NEUROPATHY PATIENT SURVEY RESULTS

Symptom Percentage Notes
Arm Pain 69%

Atrophy 62%
Back Pain 62%
Depression 77%
Difficulty Sleeping 77%
Difficulty Walking 92%
Difficulty Writing 46%
Dizziness 69%
Fatigue 92%
Foot Pain 77%
Gastrointestinal 54%
Hand Pain 69%
Headaches 85%
Hearing Disturbances 54%
Hypersensitivity 77%
IBS 31%
Insomnia 69%
Leg Pain 77%
Memory 100%
Migraines 69%
Muscle Spasms 77%
Nausea 77%
Neck Pain 46%
Optical Migraines 46%
Shoulder Pain 77%
Thyroid 38%
TMJ 38%
Vertigo 69%
Vision Disturbances 62%
Vomiting 46%
Weight Gain 62%
Weight Loss 38%
Other 69% ~ Balance, Constipation, Burning, Redness, Changes in nails, abnormal hair growth, loss of nails, swelling, skin color changes, skin cold/hot, hair loss, balance, numbness

What Type of Injury Caused Your Neuropathy to Develop?
Work 8%
Auto 23%
Unknown 23%
Surgery 15%
Home 8%
Other 23%

# of Docs prior to Diagnosis
1-3 54%
4-6 38%
6-10 0%
10-15 0%
15-20 0%
20+ 8%

Time it took to get proper Diagnosis
>6months 38%
6-12 Months 46%
12-24 Months 8%
<24 Months 23%

Do You Have A Care Taker- Yes 54%
Is Your Caretaker Related To You?- Yes 46%

Do you Use An Assisted Mobility Device? - Yes 85%
Cane 31%
Wheelchair 46%
Scooter 15%
Other: 15% ~ Crutches

Do You Have Health Insurance- Yes 69%
Do You Have Medicare-Yes 62%

Are You Considered Disability Status - Yes 77%
Short Term 0%
Long Term 23%
Social Security (Permanent) 69%
Applied/Waiting for Response 8%
Applied and Turned Down 0%

Description of Your Pain
Burning 100%
Constant 85%
Cutting 54%
Dull 62%
Electric 69%
Intermittent 31%
Numbing 69%
Sharp 77%
Shooting 62%
Stabbing 85%
Other 62% ~ Surge, Tight/Deep Bone Pain, Aching, Nauseating, Crushing, Gnawing, Pins/Needles, Tingling, Debilitating, Intense Ache

Are You Taking Medications for?
Depression 69%
High Blood Pressure 15%
Low Blood Pressure 8%
Migraines 46%
Nausea 46%
Pain 85%
Thyroid 31%
Vertigo 23%
Vitamins 8%
Other: 46% ~ Asthma, Cholesterol, Depression, Steroid-induced Psychosis, Hypoglycemia, Anxiety, IBS, Reflux, Muscle Relaxant, Anti- Inflammatory(NSAID), Vomiting, Diarrhea, Heartburn, Constipation, Allergies, ADHD, Heart rate, Tremors, Loss of Appetite

Have you had Therapy For?
Chiropractic 31%
Hydrotherapy 46%
Massage 46%
Mental 62%
Physical 100%
Occupational 8%
Home Care 8%

Are you happy w/ your healthcare providers knowledge of your condition? 62%

CARETAKERS SURVEY RESULTS

Symptom You See in the Patient You Care For/Percentage
Arm Pain 73%
Atrophy 64%
Back Pain 82%
Depression 100%
Difficulty Sleeping 100%
Difficulty Walking 91%
Difficulty Writing 73%
Dizziness 73%
Fatigue 91%
Foot Pain 91%
Gastrointestinal 36%
Hand Pain 91%
Headaches 82%
Hearing Disturbances 64%
Hypersensitivity 82%
IBS 27%
Insomnia 100%
Leg Pain 82%
Memory 91%
Migraines 73%
Muscle Spasms 100%
Nausea 100%
Neck Pain 73%
Optical Migraines 55%
Shoulder Pain 82%
Thyroid 36%
TMJ 18%
Vertigo 55%
Vision Disturbances 82%
Vomiting 64%
Weight Gain 82%
Weight Loss 55%
Other 9% ~ Toe Nail Growth

Do you feel you understand Neuropathy
55%

Do you feel you understand the pain the patient in your life suffers from? 73%

Do you feel depressed and frustrated when you see your patient and don’t have much relief to offer 100%

Do you assist with?
Showering 36%
Driving 82%
Cooking 73%
Daily Activities 64%
Cleaning 73%
Organization 36%
Pushing Wheelchair 55%
Other 18% ~ Opening Doors, Shopping

Are you happy w/ your knowledge of Neuropathy 36%



One of our Faces of Motivation.
Abby has had RSD since 2004

 

HELPFUL INFO FOR PATIENTS AND CARETAKERS

Last Updated: December 1, 2008

 

The Power of Pain foundation was established in January, 2007. 
We are a 501 (c ) (3) foundation with the sole purpose of making a charitable contribution to the Chronic Pain Community specifically those suffering with RSD.