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The POPF is committed in helping to inform patients about support programs, assistance programs, healthcare providers and personal injury attorneys. Please use the lists as a reference guide in choosing your support group, medical or legal advisors.
YOU CAN VISIT OUR LIST OF RESOURCES
Doctors, Pain Groups, Online Resources, Organizations
BREAKING NEWS COVERAGE FOR PATIENTS FROM RECENT MEDICAL CONFERENCES
  Patient Power is devoted to bringing significant news from medical conferences to patients living with the conditions covered. Patient Power is a one-of-a-kind resource bringing in-depth information to patients with cancer and chronic illness. Audio and video interviews, with transcripts, help patients make informed decisions in partnership with their medical team. Founded by patient-advocate, medical journalist, author and cancer survivor Andrew Schorr, Patient Power goes far beyond basic health information. Patient-centric programs focus on delivering the most credible, authoritative and up-to-date health information. More than 2,000 on-demand programs feature leading medical experts, inspiring patients, unforgettable stories and actionable medical guidance on serious health concerns. Connect with Patient Power on Facebook, YouTube, Twitter and view the entire library of audio and video interviews at www.PatientPower.info.
DrugWatch.com
We aim to educate the public about prescription and over-the-counter medications, drug recalls and the side effects associated with thousands of different drugs, including pain relief medications. According to the University of Texas Southwestern Medical College, more than 30 million Americans take pain relievers daily. DrugWatch.com provides extensive information about these medications, including those prescribed to treat conditions such as headaches, arthritis and sore muscles, as well as those prescribed to help a patient handle the severe pain associated with certain medical procedures and diseases. www.drugwatch.com
Research Study for Self-Management Of Neuropathic Pain
NIH-funded research study entitled "Internet Support for Self-Managing Neuropathic Pain." The study is testing a Web-based program to help people with Neuropathic pain manage their pain and pain symptoms by teaching pain self-management skills.
Contact: Sadaf Charity, Project Manager. 617-332 6028 x274, www.inflexxion.com
SelfGrowth.com -is the most complete guide to information about Self Help on the Internet.
 PainPathways Magazine
 PainPathways is a quarterly magazine for acute, chronic and cancer pain management. PainPathways is the ultimate resource for patients, caregivers and physicians seeking current research and therapies and is available in doctors’ offices, Barnes & Noble and B. Dalton bookstores nationwide. PainPathways may also be purchased online. To subscribe to the Magazine click here
RSDSA Launches Major Study On The Natural And Long-term Health Effects Of CRPS
The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) just launched an internet-based study entitled Long-term Health Effects Of CRPS- 20 Year Cross-sectional And Longitudinal Observational Cohort Study, funded by a Brodsky Family Foundation grant. The purpose of the study is to document the natural history of CRPS over a 20-year period. The study design is patterned after a registry database conducted by the North American Research Committee on Multiple Sclerosis (NARCOMS) Project, which has 34.000 participants. A previous internet-based survey of people with CRPS had 1,300, of whom about 1,000 participated in a follow-up questionnaire. RSDSA hopes that the new study will attract many more participants who will share their experience with CRPS for the benefit of all.
Anyone with the diagnosis of CRPS Types I and II can participate via a link on RSDSA’s website, or from the study website (www.crpssurvey.org) Potential participants, who are not familiar or comfortable with Internet-based communication, can contract the study’s project manager to obtain paper forms and questionnaires. Participation is voluntary and participants can withdraw from the study anytime they wish. Each year, the participants will be asked to answer questions about their health and healthcare utilization, treatment, and how CRPS is affecting their health and wellness. Because participants do not need to submit medical records to register for the study, we will periodically contact them to obtain medical records to validate the information in the database.
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Mother Earth Pillows
www.motherearthpillows.com
800-344-2072
Golden Flax & Herbal Pillows for Hot & Cold therapy
Buckwheat Hull Pillows for conformable comfort
Moderate to Severe Chronic Pain Management Clinical Trials in Pediatric Patients
If you are a parent with a child that experiences moderate to severe chronic pain and would like more information about pediatric chronic pain clinical studies being conducted, or a healthcare professional aware of pediatric patients requiring analgesia who might be appropriate for and interested in participating in clinical studies, please contact Purdue Pharma L.P's Medical Services Department: purduepediatrics@pharma.com,
1-888-726-7535; option #1
Suggested Reading- "The Other Brain" by Dr. R. Douglas Fields, PhD. He explains in detail what happens and WHY we have chronic pain. His research has been duplicated by Dr. Linda Watkins, PhD, neuroscientist at University of Colorado.
Coming Down the Pipeline Ibudilast by Medici-Nova. They are working on a 3rd clinical trial of a drug called Ibudilast which has been used in Japan and Korea for 21 years ! It quiets Glia cells and lowers the need for other pain medications dramatically in many illnesses. It has been used in MS, asthma, Diabetic Neuropathy, RSD and many other chronic pain illnesses. We hope that the FDA will soon approve it so millions of people here in the USA can get relief from chronic pain. more info at www.medic-nova.com and read about MN-166.
Burdens Do a Body Good by Michele Howe - Women's Health & Lifestyle Writer
http://michelehowe.wordpress.com, Burdens Do a Body Good: Meeting Life's Challenges with Strength (and Soul) which was released May 2010 and co-authored with my Toledo, OH, orthopedic surgeon, Dr. Christopher A. Foetisch. This book came about after I went through six shoulder surgeries and Dr. Foetisch and I began writing on women's inspirational and health topics. I'm inserting some basic information, and if you're interested, I can have a review copy sent to you as well.
U.S. Food and Drug Administration (FDA) Approves AdaptiveStim™ with RestoreSensor™ for the Management of Chronic Pain
Good news for the chronic pain community: Medtronic, Inc. is pleased to share the U.S. Food and Drug Administration (FDA) approval of its AdaptiveStim™ with RestoreSensor™ neurostimulation system, the first and only chronic pain treatment that harnesses motion sensor technology found in smart phones and computer gaming systems to provide effective pain relief and convenience by automatically adapting stimulation levels to the needs of people with chronic back and/or leg pain. Nearly 200,000 people worldwide have received Medtronic neurostimulation therapy for intractable, chronic pain. For more information about Medtronic neurostimulation for the treatment of chronic pain, including a full list of potential side effects and complications, please visit http://www.tamethepain.com or contact 1-888-430-PAIN (7426).
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