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ORGANIZATIONS AND OTHER HELPFUL RESOURCES
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Facility
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Notes
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City, State
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Phone
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Power of Pain Foundation
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Provides: community based support services that address the immediate need of Neuropathy pain patients. powerofpainfoundation@gmail.com
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213 Nottingham Drive, Colonial Heights, VA, 23834
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804-526-1912
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Allergy and Asthma Info Center Hotline National
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National
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National
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800-727-5400
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American Academy of Pain Management
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Foundation
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National
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None Given
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American Chronic Pain Association, Inc
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800 Chapters World wide, Provides: Self Help, support, coping skills, workbooks, e-mail: acpa@ix.netcom.com
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PO Box 850, Rocklin, CA 95677
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916-632-0922
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American College of Rheumatology
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Rheumatology
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60 Executive Park S. Ste 150, Atlanta, GA 30329
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404-633-3777
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American Herbalists Guilde
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The Holistic Medicines
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PO Box 1127, Forestville, CA 95436
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None Given
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American Holistic Medical Association
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Holistic Medicines
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4101 Lake Boone Trail, Suite 201, Raleigh, NC 27607
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919-787-5181
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American Physical Therapy Association
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Physical Therapy
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1111 N. Fairfax St, Alexandria, VA 22314
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703-684-2782
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American Self Help Clearing House
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Hotline: Provides referrals
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New Jersey (national)
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201-625-7101 F: 201-625-8848
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Americans with Disabilities Act
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Office of Equal Employment Opportunity
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National
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800-669-3362
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Arizona Prescription Assistance Services
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prescriptions@cableone.net
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303 E. Gurley St, 410, Prescott, AZ 86301
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928-708-0272
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Arthritis Foundation
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help@arthritis.org
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1314 Spring Street NW, Atlanta, GA 30309
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404-872-7100 800-283-7800
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Arthritis Foundation
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www.arthritis.org
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Washington DC 202-539-6800
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None Given
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Arthritis Foundation Central PA Chapter 17
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National
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19th Street PO Box 668, Camp Hill, PA 17011
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717-763-0900
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Back Pain Hotline
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Hotline
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National
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800-247-2225
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Blaustein Pain Treatment Ctr Johns Hopkins Univ
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Info and Referrals, Particularly interest in RSD, Director: James, Campbell, M.D.
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Baltimore, MD 410-955-0873
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410-955-0873
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Body and Mind Connection
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The A unique bookshop experience Mondays: Guided mediation 7-8pm, Yoga- Saturdays 10:30-noon, $10
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915 King Street, Alexandria, VA 22314
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703-519-8644
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Center for Rehab Technologies Info
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Info on Assistance technology, products and resources
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National
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800-726-9119
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Clearinghouse for the handicapped Office of special education and rehab services
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US Dept of Education
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330 C. St. SW, Rm 3132, Switzer Bldg, Washington DC 20202
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202-732-1244
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Cook’s Medical Care Company
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Delivery for electrodes
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Pennsylvania
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717-283-5238
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CRPS (RSD) Association of NY State
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Contact: Marsha Rothstein-Laino, RN, MarshaTheNurse@aol.com
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Bellmore, NY
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516-221-7220
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CT Pain Foundation, Inc.
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Contact: Paul Gileno, Founder ctpainfoundation@gmail.com, www.ctpainfoundation.com
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Connecticut
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N/A
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Department of Rehab Services for VA
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Contact: Erica Lovelace, for medical insurance and SSI benefits
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Alexandria, VA
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703-960-3411
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Disability Claim Advocates
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Website provides a wealth of info & support on SSI. Contact: Katie Knighten, Disability Advocate, kknighten@disability-claims.net
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www.Disability-Claims.net
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N/A
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Disability Law Project
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Advocacy Group
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Pennsylvania
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215-238-8070
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Disabled Women’s Network
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Contact: Dawn
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National
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800-645-5944
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Fair Oaks Hospital
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Pain Center
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Fair Oaks, VA
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703-391-3600
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Fairfax Hospital
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Pain Center
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Fairfax, VA
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703-698-1110
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Fibromyalgia Network
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Over 75 Self help groups, physician referrals
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PO Box 31750, Tucson, AZ 85751
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520-290-5508
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George Washington University Medical Ctr
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Pain Center
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Washington DC
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202-994-0707
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Georgetown University Hospital
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Pain Center
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Georgetown, DC
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202-784-3040
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Healing Alternatives Foundation
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Foundation
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1748 Market Street, Ste 205, San Francisco, CA 94114
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415-626-4053
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Healthway Natural Foods
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Bull Run Center
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Manassas, VA
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703-361-1883
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Healthway Natural Foods
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FFX Shopping Center
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Fairfax, VA
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703-591-1121
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Herb Research Foundation
|
Research
|
National
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800-748-2617
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|
Heywer Chronic Pain Association
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Contact: Jan Heyen, Executive Director, www.survivingpain.com
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National
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N/A
|
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International Association for the study of Pain
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The Pain Studies
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909 NE 43rd Street, Suite 306, Seattle, WA 98105
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206-547-2157
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Johns Hopkins University
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Pain Center
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600 N. Wolfe Street Olsen 304 Baltimore, MD 21287
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410-328-6120
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McLean Family Counseling Center
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Chronic Pain Support Group Contact: Dr. Deotsch,
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1495 Chain Bridge Road, #201, McLean, VA 22101
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703-821-3404
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Mt Vernon Hospital
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Pain Center
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Mt. Vernon, VA
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703-664-7108
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National Center for Post Traumatic Stress Disorder
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Foundation
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VA Medical Center, 116D White River Junction, VT 05001
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802-296-5132
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National Chronic Pain Outreach Assoc, Inc.
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ncpoa1@aol.com Provides: educational materials, quarterly newsletter, lifeline, focuses on pain mang methods, coping skills, book reviews & more.
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7979 Old Georgetown Road, Ste 100, Bethesda, MD 20814
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301-652-4948
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National Clearinghouse for Woman & Girls with Disabilities
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Equity Concepts, Inc
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114 E. 3rd Street, New York, NY 10016
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212-725-1803
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National Council on Women’s Health Foundation
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Women’s Health
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1300 York Ave, Box 52, NY NY 10021
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212-535-0031
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National Family Caregivers Association
|
Foundation
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9223 Longbranch Pkwy. Silver Spring, MD 20901
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301-949-3638
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National Foundation for Depressive Illness
|
Hotline
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National
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800-248-4344
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National Health Info Center
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Hotline: Info and referrals to support groups, professional societies, govt agencies, land publications relative to health issues
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National
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800-336-4797
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National Health Information Center
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US public health service, Provides: ask for a publications list and the “health finder” list of toll-free numbers
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PO Box 1133, Washington, DC 20013-1133
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800-336-4797
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National Institute for Well-being
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Aroma therapy Center
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4016 Lake Glen Rd, Fairfax, VA 22033
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703-222-0960
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National Library of Medicine
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Provides: Call about researches on medical literature on health related topics
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8600 Rockville, Place Bethesda, MD 20894
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800-638-8480
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|
National Organization for Rare Disorders
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Provides: Info, advocacy, referrals to resources
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PO Box 8923, New Fairfield, CT 06812
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203-746-6518
|
|
National Organization of Rare Disorders
|
Info & networking opportunities for people w/ rare disorders, M-F 9-5
|
National
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800-999-6673
|
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National Rehab Info Ctr Resources & Research for the Rehab of Disabilities
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Info on rehab of all types, M-F 8-6pm
|
National
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800-34-NARIC
|
|
National Self-help Clearing house
|
Provides: info, referrals, newsletters
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25 West 43rd Street, Room 620 New York, NY 10036
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212-354-8525
|
|
National Spinal Cord Injury Association
|
Hotline
|
National
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804-962-9629
|
|
National Woman’s Health Network
|
Newsletters
|
514 10th street, NW, Suite 400, Washington DC
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202-347-1140
|
|
National Women’s Health Center
|
Foundation
|
National
|
800-733-4409
|
|
Natural Healing Center
|
Natural Healing
|
243 Church St, NW, Ste 100D Vienna, VA 22180
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703-938-4868
|
|
Nightingale Research Foundation
|
Foundation
|
Canada
|
613-728-9643
|
|
NIH/ National Arthritis, Muscles and Skin Diseases
|
Information Clearinghouse
|
One AMS Circle, Bethesda, MD 20892-3675
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None Given
|
|
Pain Center Georgetown
|
University Medical Center
|
3800 Reservoir Road NW Washington, DC 20007
|
202-784-2090
|
|
Pain Control by Health Touch
|
Foundation
|
National
|
None Given
|
|
Pain Institute in Chicago
|
The Pain Center
|
325 W. Huron Street, Suite 220 Chicago, IL 60610
|
312-266-9797 F: 312-266-9001
|
|
Painnet, Inc.
|
Find a pain medicine practitioner in your area call
|
National
|
888-800-0764
|
|
People’s Medical Society
|
Susan Taylor, M-F 9-5 Helps medical consumer become aware of their medical rights, RSD chapter
|
Annandale, VA
|
800-624-8773
|
|
Physical Medicine Research
|
Finder Medicine Research
|
207 W. Hasting Street, Suite 510 Vancouver, BC V6B1H7
|
604-684-4148
|
|
Project on Women & Disability
|
Research
|
One Ashburton Place, Rm 1305 Boston, MA 02108
|
617-727-7440
|
|
Reflex Sympathetic Dystrophy Program
|
The Center for Spine Rehabilitation Pain Center
|
125 E. Hampden Ave, Englewood, CP 80110
|
303-788-6356
|
|
RSD Hope
|
Advocacy Group
|
PO Box 875 Harrison, ME 04040
|
None Given
|
|
RSDSA
|
Dues $15 per year, Provides: newsletter, pen pal services, referrals, databank, annual digest, Brochures, Video/DVD, Booklets, Support Group Starter Packet, www.rsds.org
|
116 Haddon Ave, Suite D. Haddonfield, NJ 08033
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609-795-8845
|
|
Self Help Info Network Exchange
|
Provides info and referrals for support groups, community resource library
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538 Spruce Street, Suite 420 Scranton, PA 18503
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717-961-1234 F: 717-348-5816
|
|
Self-help Clearinghouse of Greater Washington
|
The Foundation Greater Washington DC Area
|
Greater Washington DC Area
|
703-941-5465
|
|
Skyline Nutrition Center
|
Monday - Saturday 10am-9pm, Sunday 12-5
|
5151 Leesburg Park Falls Church, VA
|
703-578-6460
|
|
Social Security Office
|
Info on all aspects of SSA
|
National
|
800-772-1213
|
|
Trinity Physical Therapy
|
Outpatient Chronic Pain & Acute Pain
|
10560 Main Street, #PH-9, Fairfax, VA 22303
|
703-385-8232
|
|
Unity Club
|
Support Group
|
Greater Washington DC Area
|
703-534-9835
|
|
USA Fibrositis Association
|
Provides Underwriting for research, sponsors & Finances
|
PO Box 20408 Columbus, OH 43220
|
614-764-8010
|
|
White House Citizens Comment Line
|
Government
|
Washington, DC. (National)
|
202-456-1111
|
|
World Research Foundation
|
Research
|
Sherman Oaks, CA
|
818-907-5483
|
|
Young Adults w. Arthritis Topical
|
Mtgs w/ guest speakers (free), Contact: Rachel Cohen GWU Hospital, Team Rm, 1st floor, Use main entrance
|
901 23rd Street, NW Washington DC
|
202-546-5746
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