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ORGANIZATIONS AND OTHER HELPFUL RESOURCES
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Facility
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Notes
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City, State
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Phone
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Power of Pain Foundation
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Provides: community based support services that address the immediate need of Neuropathy pain patients. powerofpainfoundation@gmail.com
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213 Nottingham Drive, Colonial Heights, VA, 23834
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804-657-PAIN (7243)
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Allergy and Asthma Info Center Hotline National
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National
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National
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800-727-5400
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American Academy of Pain Management
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Foundation
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National
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None Given
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American Chronic Pain Association, Inc
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800 Chapters World wide, Provides: Self Help, support, coping skills, workbooks, e-mail: acpa@ix.netcom.com
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PO Box 850, Rocklin, CA 95677
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916-632-0922
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American College of Rheumatology
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Rheumatology
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60 Executive Park S. Ste 150, Atlanta, GA 30329
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404-633-3777
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American Herbalists Guilde
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The Holistic Medicines
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PO Box 1127, Forestville, CA 95436
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None Given
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American Holistic Medical Association
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Holistic Medicines
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4101 Lake Boone Trail, Suite 201, Raleigh, NC 27607
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919-787-5181
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American Physical Therapy Association
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Physical Therapy
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1111 N. Fairfax St, Alexandria, VA 22314
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703-684-2782
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American Self Help Clearing House
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Hotline: Provides referrals
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New Jersey (national)
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201-625-7101 F: 201-625-8848
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Americans with Disabilities Act
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Office of Equal Employment Opportunity
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National
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800-669-3362
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Arizona Prescription Assistance Services
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prescriptions@cableone.net
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303 E. Gurley St, 410, Prescott, AZ 86301
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928-708-0272
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Arthritis Foundation
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help@arthritis.org
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1314 Spring Street NW, Atlanta, GA 30309
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404-872-7100 800-283-7800
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Arthritis Foundation
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www.arthritis.org
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Washington DC 202-539-6800
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None Given
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Arthritis Foundation Central PA Chapter 17
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National
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19th Street PO Box 668, Camp Hill, PA 17011
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717-763-0900
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Back Pain Hotline
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Hotline
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National
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800-247-2225
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Blaustein Pain Treatment Ctr Johns Hopkins Univ
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Info and Referrals, Particularly interest in RSD, Director: James, Campbell, M.D.
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Baltimore, MD 410-955-0873
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410-955-0873
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Body and Mind Connection
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The A unique bookshop experience Mondays: Guided mediation 7-8pm, Yoga- Saturdays 10:30-noon, $10
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915 King Street, Alexandria, VA 22314
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703-519-8644
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Center for Rehab Technologies Info
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Info on Assistance technology, products and resources
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National
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800-726-9119
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Clearinghouse for the handicapped Office of special education and rehab services
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US Dept of Education
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330 C. St. SW, Rm 3132, Switzer Bldg, Washington DC 20202
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202-732-1244
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Cook’s Medical Care Company
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Delivery for electrodes
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Pennsylvania
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717-283-5238
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CRPS (RSD) Association of NY State
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Contact: Marsha Rothstein-Laino, RN, MarshaTheNurse@aol.com
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Bellmore, NY
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516-221-7220
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US Pain Foundation Formerly: CT Pain Foundation
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Contact: Paul Gileno, Founder USpainfoundation@gmail.com, www.uspainfoundation.org
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National
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N/A
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Department of Rehab Services for VA
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Contact: Erica Lovelace, for medical insurance and SSI benefits
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Alexandria, VA
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703-960-3411
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Disability Claim Advocates
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Website provides a wealth of info & support on SSI. Contact: Katie Knighten, Disability Advocate, kknighten@disability-claims.net
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www.Disability-Claims.net
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N/A
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Disability Law Project
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Advocacy Group
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Pennsylvania
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215-238-8070
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Disabled Women’s Network
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Contact: Dawn
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National
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800-645-5944
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Fair Oaks Hospital
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Pain Center
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Fair Oaks, VA
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703-391-3600
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Fairfax Hospital
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Pain Center
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Fairfax, VA
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703-698-1110
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Fibromyalgia Network
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Over 75 Self help groups, physician referrals
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PO Box 31750, Tucson, AZ 85751
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520-290-5508
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Foundation for Ethics In Pain Care
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Schatman-Robinson
Pain Psychology Associates
www.painethics.org
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11820 Northup Way, Suite E 200 Bellevue, WA 98005
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425-647-4880
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George Washington University Medical Ctr
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Pain Center
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Washington DC
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202-994-0707
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Georgetown University Hospital
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Pain Center
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Georgetown, DC
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202-784-3040
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Healing Alternatives Foundation
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Foundation
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1748 Market Street, Ste 205, San Francisco, CA 94114
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415-626-4053
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Healthway Natural Foods
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Bull Run Center
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Manassas, VA
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703-361-1883
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Healthway Natural Foods
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FFX Shopping Center
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Fairfax, VA
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703-591-1121
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Herb Research Foundation
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Research
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National
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800-748-2617
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Houston Back and Neck Pain Support Group
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Meets on the first Thursday of every month, at 6:30pm, The goals of this group are to provide a forum in which those suffering from acute, sub acute, and chronic back and neck pain, may educate each other, as well as educate us, as to their problems, which involve not only pain, but the issues surrounding the pain.
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The Houston Back and Neck Pain Clinic
12121 Richmond Ave, Suite 302
Houston, TX 77082
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281-870-9292
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Heywer Chronic Pain Association
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Contact: Jan Heyen, Executive Director, www.survivingpain.com
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National
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N/A
|
|
International Association for the study of Pain
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The Pain Studies
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909 NE 43rd Street, Suite 306, Seattle, WA 98105
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206-547-2157
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Johns Hopkins University
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Pain Center
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600 N. Wolfe Street Olsen 304 Baltimore, MD 21287
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410-328-6120
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McLean Family Counseling Center
|
Chronic Pain Support Group Contact: Dr. Deotsch,
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1495 Chain Bridge Road, #201, McLean, VA 22101
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703-821-3404
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Mt Vernon Hospital
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Pain Center
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Mt. Vernon, VA
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703-664-7108
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|
National MS Society, AZ Chapter
|
Philip Carll, MSW, Vice President, Programs & Services
philip.carll@nmss.org
http://aza.nationalMSsociety.org
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5025 E. Washington St, Ste 102
Phoenix, AZ 85034
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800-344-4867
480 968 2488
fax 480 966 4049
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National Center for Post Traumatic Stress Disorder
|
Foundation
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VA Medical Center, 116D White River Junction, VT 05001
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802-296-5132
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National Chronic Pain Outreach Assoc, Inc.
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ncpoa1@aol.com Provides: educational materials, quarterly newsletter, lifeline, focuses on pain mang methods, coping skills, book reviews & more.
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7979 Old Georgetown Road, Ste 100, Bethesda, MD 20814
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301-652-4948
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National Clearinghouse for Woman & Girls with Disabilities
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Equity Concepts, Inc
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114 E. 3rd Street, New York, NY 10016
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212-725-1803
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National Council on Women’s Health Foundation
|
Women’s Health
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1300 York Ave, Box 52, NY NY 10021
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212-535-0031
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National Family Caregivers Association
|
Foundation
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9223 Longbranch Pkwy. Silver Spring, MD 20901
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301-949-3638
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National Foundation for Depressive Illness
|
Hotline
|
National
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800-248-4344
|
|
National Health Info Center
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Hotline: Info and referrals to support groups, professional societies, govt agencies, land publications relative to health issues
|
National
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800-336-4797
|
|
National Health Information Center
|
US public health service, Provides: ask for a publications list and the “health finder” list of toll-free numbers
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PO Box 1133, Washington, DC 20013-1133
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800-336-4797
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National Institute for Well-being
|
Aroma therapy Center
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4016 Lake Glen Rd, Fairfax, VA 22033
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703-222-0960
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|
National Library of Medicine
|
Provides: Call about researches on medical literature on health related topics
|
8600 Rockville, Place Bethesda, MD 20894
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800-638-8480
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National Organization for Rare Disorders
|
Provides: Info, advocacy, referrals to resources
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PO Box 8923, New Fairfield, CT 06812
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203-746-6518
|
|
National Organization of Rare Disorders
|
Info & networking opportunities for people w/ rare disorders, M-F 9-5
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National
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800-999-6673
|
|
National Rehab Info Ctr Resources & Research for the Rehab of Disabilities
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Info on rehab of all types, M-F 8-6pm
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National
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800-34-NARIC
|
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National Self-help Clearing house
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Provides: info, referrals, newsletters
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25 West 43rd Street, Room 620 New York, NY 10036
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212-354-8525
|
|
National Spinal Cord Injury Association
|
Hotline
|
National
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804-962-9629
|
|
National Woman’s Health Network
|
Newsletters
|
514 10th street, NW, Suite 400, Washington DC
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202-347-1140
|
|
National Women’s Health Center
|
Foundation
|
National
|
800-733-4409
|
|
Natural Healing Center
|
Natural Healing
|
243 Church St, NW, Ste 100D Vienna, VA 22180
|
703-938-4868
|
|
The Neuropathy Association
|
Please help us bring help, hope and healing to millions
Contact: Tina Tockarshewsky, Pres & CEO, ttockars@neuropathy.org
www.neuropathy.org
|
60 East 42nd Street, Suite 942
New York, N.Y. 10165-0930
|
212-692-0380
F: 212-692-0668
|
|
Nightingale Research Foundation
|
Foundation
|
Canada
|
613-728-9643
|
|
NIH/ National Arthritis, Muscles and Skin Diseases
|
Information Clearinghouse
|
One AMS Circle, Bethesda, MD 20892-3675
|
None Given
|
|
Pain Center Georgetown
|
University Medical Center
|
3800 Reservoir Road NW Washington, DC 20007
|
202-784-2090
|
|
Pain Control by Health Touch
|
Foundation
|
National
|
None Given
|
|
Pain Institute in Chicago
|
The Pain Center
|
325 W. Huron Street, Suite 220 Chicago, IL 60610
|
312-266-9797 F: 312-266-9001
|
|
Painnet, Inc.
|
Find a pain medicine practitioner in your area call
|
National
|
888-800-0764
|
|
Patient Power
|
PatientPower.info
|
9220 SE 68th Street
Mercer Island, WA 98040-5135
|
None Given
|
|
People’s Medical Society
|
Susan Taylor, M-F 9-5 Helps medical consumer become aware of their medical rights, RSD chapter
|
Annandale, VA
|
800-624-8773
|
|
Physical Medicine Research
|
Finder Medicine Research
|
207 W. Hasting Street, Suite 510 Vancouver, BC V6B1H7
|
604-684-4148
|
|
Project on Women & Disability
|
Research
|
One Ashburton Place, Rm 1305 Boston, MA 02108
|
617-727-7440
|
|
Reflex Sympathetic Dystrophy Program
|
The Center for Spine Rehabilitation Pain Center
|
125 E. Hampden Ave, Englewood, CP 80110
|
303-788-6356
|
|
RSD Hope
|
Advocacy Group
|
PO Box 875 Harrison, ME 04040
|
None Given
|
|
RSDSA
|
Dues $15 per year, Provides: newsletter, pen pal services, referrals, databank, annual digest, Brochures, Video/DVD, Booklets, Support Group Starter Packet, www.rsds.org, contact: info@rsds.org
|
99 Cherry Street, Milford, CT 06460
|
877 662 7737
|
|
Self Help Info Network Exchange
|
Provides info and referrals for support groups, community resource library
|
538 Spruce Street, Suite 420 Scranton, PA 18503
|
717-961-1234 F: 717-348-5816
|
|
Self-help Clearinghouse of Greater Washington
|
The Foundation Greater Washington DC Area
|
Greater Washington DC Area
|
703-941-5465
|
|
Skyline Nutrition Center
|
Monday - Saturday 10am-9pm, Sunday 12-5
|
5151 Leesburg Park Falls Church, VA
|
703-578-6460
|
|
Social Security Office
|
Info on all aspects of SSA
|
National
|
800-772-1213
|
|
Trinity Physical Therapy
|
Outpatient Chronic Pain & Acute Pain
|
10560 Main Street, #PH-9, Fairfax, VA 22303
|
703-385-8232
|
|
Unity Club
|
Support Group
|
Greater Washington DC Area
|
703-534-9835
|
|
USA Fibrositis Association
|
Provides Underwriting for research, sponsors & Finances
|
PO Box 20408 Columbus, OH 43220
|
614-764-8010
|
|
VIPER - Virginia Institute of Pain Education and Research
|
VIPER provides Education, Training, Consulting and Research in the treatment and management of chronic pain conditions, mentoring and training in of Chronic Pain Medicine to physicians, health care providers, and the general public. We explore conventional, alternative, and complementary medicine and their uses in treating chronic pain conditions, info@viperpain.com
|
www.viperpain.com/Home_Page.html
Richmond Virginia
|
fax-(434) 823 5771
|
|
White House Citizens Comment Line
|
Government
|
Washington, DC. (National)
|
202-456-1111
|
|
World Research Foundation
|
Research
|
Sherman Oaks, CA
|
818-907-5483
|
|
Young Adults w. Arthritis Topical
|
Mtgs w/ guest speakers (free), Contact: Rachel Cohen GWU Hospital, Team Rm, 1st floor, Use main entrance
|
901 23rd Street, NW Washington DC
|
202-546-5746
|
|
Neuro Treatment Centers of America
|
The is a non profit patient information organization whose main goal is to help create a Neuropathy free world. With its connections to state-of-the-art technogloies, collaboration with world renowned scientists and a dedicated group of active, certified Neuropathy professional, the offers hope where suffering patients often see none
Contact: drjoe.az@gmail.com
more in: info@neurotca.com
|
Edwards medical plaza
1300 north 12th ST Suite 310
Phoenix, AZ. 85006
|
602-663-4808
|
