Patient - Robert Hinton’s struggle with RSD

Mr. Hinton is 36, of Cumberland, RI married his High School sweetheart, Lee, almost 13 years ago. The couple was leading a happy life. They also love being parents to their two young daughters. Robert was involved in a car accident in February 2005. The family’s life changed forever. This car accident caused Robert to develop Full Body RSD. RSD is a chronic neurological condition which causes severe burning pain as well as other symptoms listed on the symptoms page of this site. This pain is 24/7 and does not stop. Prior to Robert’s accident he had a career selling durable medical equipment and was also a Firefighter and EMT in North Smithfield, RI.

Robert has undergone all standard treatments for RSD including physical therapy, over 100 nerve blocks, epidural injections, medications and nerve stimulation and nothing has helped slow the disease progression. Robert has been seeing Dr. Schwartzman, an RSD specialist from Philadelphia, PA,  for his care. Robert is working hard to raise the $30,000 for his needed Ketamine infusion and travel expenses. Robert’s family held a Spaghetti and Meatball Dinner / Raffle, on September 27, 09 at their Parish, Saint James Church, Manville, RI. The family was able to raise almost $3,000 for Robert’s Ketamine treatment. The Power of Pain Foundation has also awarded Robert a small grant to help with travel costs for this procedure. The Hinton family has created a website were additional donations can be made, you can learn about RSD, view news footage and follow Robert’s progress in greater detail. The website is http://www.robertsfightwithrsd.webs.com. Please also check back here to see progress notes on Robert’s fight.

Name: Pat Eaton
City: Tacoma, WA, Sent:: 04/24/2009 10:04:22 am Thank you for this info!  My husband went through a trauma surgery, was intibated for two and half months was in a coma for  2 months, in rehab for P.T. for 4 weeks, cannot walk, cannot use fingers, has burning pain...  no one could tell me exactly what the problem is. Your site has given me some valuable tools! Thank you.

Name: Cathy Bergman, St. Andrew's The Apostle
City: Chandler, AZ, Sent:: 04/04/2009 02:04:25 pm
(Power of Pain Foundation) Ken & Barby,
Thank you for your energy and brightness, for your kindness and compassion, for the light you shine on the world. Thank you for your time on Saturday, May 17th, 08. I enjoyed your seminar, thanks for some of the insights provided to me. May the Hope you gave to those here continues to be encountered by you and all those you meet.
Many Blessings

Name: Christine Leiendecker, Pain Patient
City: San Diego, CA, Sent:: 04/04/2009 02:04:21 pm
Power of Pain Foundation,
I was lucky enough to have someone mention that I should do research on this condition after my injury, December 2, 2006. The X-rays and MRI showed no damage and all doctors stated that my case "perplexed them". Since doing the research, I have seen a pain management doctor and now have a Sympathetic Nerve Block scheduled for May 23rd. Do to finding my saving grace and doing my research my doctor is optimistic that I caught it early enough to keep it from going permanent. I also have a wonderful support group that I would be lost without. Enjoy the show, comedy is the best medicine.

Name: Corey Edwards
Sent: Sept 15, 2009
Thank you very much for the opportunity. It was a great experience (being a volunteer). Me and Chris had a great time on stage! Brian's friend Sheldon was looking at me and Chris the whole show like he wanted to kill us cause he thought we were still talking about his clothes. ha-ha. I have been to several hypnotist shows but I have never been as convinced as I was this past show. I look forward to the next show. Best of luck to you and continue to stay strong! Take Care

Name: Mrs. Brummitt
Sent:: 05/05/2009 07:05:29 pm
I was diagnose with Polyneuropathy and a pinch nerve in my back. I have been in lots of pain for 2 yrs. I have tried physical therapy that did not help and now I go back to my back doctor. I guess he will tell me what is next. WISH ME LUCK PLEASE, Thank You Very Much, MRS. BRUMMITT

Name: Lil
City: Lil in Buckingham, VA (Arvonia), Sent:: 04/01/2009 12:04:41 pm
Dear Barby (Power of Pain Foundation),
I received the Pamphlets you sent me out, I Thank You so much, I like your pamphlets a lot more than ones I've had and seen, you break down an Important Fact, Not Everyone gets the as I'll put it "By the Book changes", I've met many RSD’ers in my 16 yrs. of having & dealing with it and we all get hit in different ways, some people sweat, some always cold, I like how there put together , gives a not so Brain Surgeon Break down. I had my hubby at work seeing how far you are from us, are you in Colonial Heights VA? I would love to get together and meet and talk with you on possibly jumping on board and helping your Organization in any way I can. You should be very Proud of yourself, the website is Great, I plan on ordering your book and I feel like your the person I've been looking for. Your a Blessing to us All whom Suffer!!!!!!!
Gentle Hugs!!!!

Name: Wendy, Pain Patient
Sent:: 04/04/2009 02:04:27 pm
Power of Pain Foundation,
Thanks so very much for all that you are doing to help all of us with RSD!
Peace

Name: Joey Meyer
Sent: Sept 15, 2009
Hi Barby,
Thank you so much for giving us the opportunity to help out! Every one of us from Chi Psi that were there really enjoyed it, not just the show, but learning about your organization and actually helping out. We really had a good time, and think The Power of Pain Foundation has a great cause. We wish the best of luck to you and your organization! And we would love to help out with any other events you may have nearby in the future. So if you ever need a hand in the future, just e-mail or call me and I am sure I can gather up a bunch more Chi Psi's to help out!