ORGANIZATIONS AND OTHER HELPFUL RESOURCES

Facility

Notes

City, State

Phone

Power of Pain Foundation

Provides: community based support services that address the immediate need of Neuropathy pain patients.
powerofpainfoundation@gmail.com

213 Nottingham Drive
Colonial Heights, VA 23834

804-526-1912

Arizona Prescription Assistance Services

prescriptions@cableone.net

303 E. Gurley St, 410
Prescott, AZ 86301

928-708-0272

Allergy and Asthma Info Center Hotline National

National

National

800-727-5400

American Academy of Pain Management

Foundation

National

None Given

American Chronic Pain Association, Inc

800 Chapters World wide, Provides: Self Help, support, coping skills, workbooks,
e-mail: acpa@ix.netcom.com

PO Box 850,
Rocklin, CA 95677

916-632-0922

American College of Rheumatology

Rheumatology

60 Executive Park S. Ste 150,
Atlanta, GA 30329

404-633-3777

American Herbalists Guilde

The Holistic Medicines

PO Box 1127
Forestville, CA 95436

None Given

American Holistic Medical Association

Holistic Medicines

4101 Lake Boone Trail,
Suite 201
Raleigh, NC 27607

919-787-5181

American Physical Therapy Association

Physical Therapy

1111 N. Fairfax St
Alexandria, VA 22314

703-684-2782

American Self Help Clearing House

Hotline: Provides referrals

New Jersey (national)

201-625-7101
F: 201-625-8848

Americans with Disabilities Act

Office of Equal Employment Opportunity

National

800-669-3362

Arthritis Foundation

www.arthritis.org

Washington DC 202-539-6800

None Given

Arthritis Foundation

help@arthritis.org

1314 Spring Street NW
Atlanta, GA 30309

404-872-7100
800-283-7800

Arthritis Foundation Central PA Chapter 17

National

19th Street PO Box 668,
Camp Hill, PA 17011

717-763-0900

Back Pain Hotline

Hotline

National

800-247-2225

Blaustein Pain Treatment Ctr Johns Hopkins Univ

Info and Referrals, Particularly interest in RSD, Director: James, Campbell, M.D.

Baltimore, MD 410-955-0873

410-955-0873

Body and Mind Connection

The A unique bookshop experience Mondays: Guided mediation 7-8pm, Yogo- Saturdays 10:30-noon, $10

915 King Street,
Alexandria VA 22314

703-519-8644

Center for Rehab Technologies Info

Info on Assistance technology, products and resources

National

800-726-9119

Clearinghouse for the handicapped Office of special education and rehab services

US Dept of Education

330 C. St. SW,
RM 3132, Switzer Bldg
Washington DC 20202

202-732-1244

Cook’s Medical Care Company

Delivery for electrodes

Pennsylvania

717-283-5238

CRPS (RSD) Association of NY State

Contact: Marsha Rothstein-Laino, RN, MarshaTheNurse@aol.com

Bellmore, NY

516-221-7220

CT Pain Foundation, Inc.

Contact: Paul Gileno, Founder
ctpainfoundation@gmail.com,
www.ctpainfoundation.com

Connecticut

N/A

Department of Rehab Services for VA

Contact: Erica Lovelace, for medical insurance and SSI benefits

Alexandria, VA

703-960-3411

Disability Claim Advocates

Website provides a wealth of info & support on SSI. Contact: Katie Knighten, Disability Advocate, kknighten@disability-claims.net

www.Disability-Claims.net

N/A

Disability Law Project

Advocacy Group

Pennsylvania

215-238-8070

Disabled Women’s Network

Contact: Dawn

National

800-645-5944

Fair Oaks Hospital

Pain Center

Fair Oaks, VA

703-391-3600

Fairfax Hospital

Pain Center

Fairfax, VA

703-698-1110

Fibromyalgia Network

Over 75 Self help groups, physician referrals

PO Box 31750,
Tucson, AZ 85751

520-290-5508

George Washington University Medical Ctr

Pain Center

Washington DC

202-994-0707

Georgetown University Hospital

Pain Center

Georgetown, DC

202-784-3040

Heywer Chronic Pain Association

Contact: Jann Heyen, Executive Director, www.survivingpain.com

National

N/A

Healing Alternatives Foundation

Foundation

1748 Market Street, Ste 205
San Francisco, CA 94114

415-626-4053

Healthway Natural Foods

Bull Run Center

Manassas, VA

703-361-1883

Healthway Natural Foods

FFX Shopping Center

Fairfax, VA

703-591-1121

Herb Research Foundation

Research

National

800-748-2617

International Association for the study of Pain

The Pain Studies

909 NE 43rd Street, Suite 306
Seattle, WA 98105

206-547-2157

Johns Hopkins University

Pain Center

600 N. Wolfe Street Olsen 304 Baltimore, MD 21287

410-328-6120

McLean Family Counseling Center

Chronic Pain Support Group Contact: Dr. Deotsch,

1495 Chain Bridge Road, #201
McLean, VA 22101

703-821-3404

Mt Vernon Hospital

Pain Center

Mt. Vernon, VA

703-664-7108

National Center for Post Traumatic Stress Disorder

Foundation

VA Medical Center, 116D
White River Junction, VT 05001

802-296-5132

National Chronic Pain Outreach Assoc, Inc.

ncpoa1@aol.com
Provides: educational materials, quarterly newsletter, lifeline, focuses on pain mang methods, coping skills, book reviews & more.

7979 Old Georgetown Road, Ste 100,
Bethesda, MD 20814

301-652-4948

National Clearinghouse for Woman & Girls with Disabilities

Equity Concepts, Inc

114 E. 3rd Street
New York, NY 10016

212-725-1803

National Council on Women’s Health Foundation

Women’s Health

1300 York Ave,
Box 52
NY, NY 10021

212-535-0031

National Family Caregivers Association

Foundation

9223 Longbranch Pkwy.
Silver Spring, MD 20901

301-949-3638

National Foundation for Depressive Illness

Hotline

National

800-248-4344

National Health Info Center

Hotline: Info and referrals to support groups, professional societies, govt agencies, land publications relative to health issues

National

800-336-4797

National Health Information Center

US public health service, Provides: ask for a publications list and the “health finder” list of toll-free numbers

PO Box 1133
Washington, DC 20013-1133

800-336-4797

National Institute for Well-being

Aroma therapy Center

4016 Lake Glen Rd,
Fairfax, VA 22033

703-222-0960

National Library of Medicine

Provides: Call about researches on medical literature on health related topics

8600 Rockville, Place
Bethesda, MD 20894

800-638-8480

National Organization for Rare Disorders

Provides: Info, advocacy, referrals to resources

PO Box 8923,
New Fairfield, CT 06812

203-746-6518

National Organization of Rare Disorders

Info & networking opportunities for people w/ rare disorders, M-F 9-5

National

800-999-6673

National Rehab Info Ctr Resources & Research for the Rehab of Disabilities

Info on rehab of all types,
M-F 8-6pm

National

800-34-NARIC

National Self-help Clearing house

Provides: info, referrals, newsletters

25 West 43rd Street, Room 620
New York, NY 10036

212-354-8525

National Spinal Cord Injury Association

Hotline

National

804-962-9629

National Woman’s Health Network

Newsletters

514 10th street, NW, Suite 400,
Washington DC

202-347-1140
F: 202-347-1168

National Women’s Health Center

Foundation

National

800-733-4409

Natural Healing Center

Natural Healing

243 Church St, NW, Ste 100D
Vienna, VA 22180

703-938-4868

Nightingale Research Foundation

Foundation

Canada

613-728-9643

NIH/ National Arthritis, Muscles and Skin Diseases

Information Clearinghouse

One AMS Circle
Bethesda, MD 20892-3675

None Given

Pain Center Georgetown

University Medical Center

3800 Reservoir Road NW
Washington, DC 20007

202-784-2090

Pain Control by Health Touch

Foundation

National

None Given

Pain Institute in Chicago

The Pain Center

325 W. Huron Street, Suite 220
Chicago, IL 60610

312-266-9797
F: 312-266-9001

Painnet, Inc.

Find a pain medicine practitioner in your area call

National

888-800-0764
800-533-PAIN

People’s Medical Society

Susan Taylor, M-F 9-5 Helps medical consumer become aware of their medical rights, RSD chapter

Annandale, VA

800-624-8773

Physical Medicine Research

Finder Medicine Research

207 W. Hasting Street, Suite 510
Vancouver, BC V6B1H7

604-684-4148

Project on Women & Disability

Research

One Ashburton Place, Rm 1305
Boston, MA 02108

617-727-7440

Reflex Sympathetic Dystrophy Program

The Center for Spine Rehabilitation Pain Center

125 E. Hampden Ave,
Englewood, CO 80110

303-788-6356

RSD Hope

Advocacy Group

PO Box 875
Harrison, ME 04040

None Given

RSDSA

Dues $15 per year, Provides: newsletter, pen pal services, referrals, databank, annual digest, Brochures, Video/DVD, Booklets, Support Group Starter Packet, www.rsds.org

116 Haddon Ave, Suite D.
Haddonfield, NJ 08033

609-795-8845

Self Help Info Network Exchange

Provides info and referrals for support groups, community resource library

538 Spruce Street, Suite 420
Scranton, PA 18503

717-961-1234
F: 717-348-5816

Self-help Clearinghouse of Greater Washington

The Foundation Greater Washington DC Area

Greater Washington DC Area

703-941-5465

Skyline Nutrition Center

Monday - Saturday 10am-9pm, Sunday 12-5

5151 Leesburg Park
Falls Church, VA

703-578-6460

Social Security Office

Info on all aspects of SSA

National

800-772-1213

Trinity Physical Therapy

Outpatient Chronic Pain & Acute Pain

10560 Main Street, #PH-9,
Fairfax, VA 22303

703-385-8232

Unity Club

Support Group

Greater Washington DC Area

703-534-9835

USA Fibrositis Association

Provides Underwriting for research, sponsors & Finances

PO Box 20408
Columbus, OH 43220

614-764-8010

White House Citizens Comment Line

Government

Washington, DC. (National)

202-456-1111

World Research Foundation

Research

Sherman Oaks, CA

818-907-5483

Young Adults w. Arthritis Topical

Mtgs w/ guest speakers (free), Contact: Rachel Cohen GWU Hospital, Team Rm, 1st floor, Use main entrance

901 23rd Street, NW
Washington DC 202-546-5746

202-546-5746