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04/15/2010
I get my port flush on Friday. I have to do it every 30 days when the port is not in use. It typically does not hurt and is very quick process. It is the same process as a cancer patient goes through. As a matter of fact. The Ketamine Infusions are also just like receiving chemo except the med in the infusion is not chemo it is Ketamine.
Barby
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04/02/2010
Most days I am doing great. Last night we had a storm come through I started throwing up from the pain. I haven't thrown up since Dec. 6 (the day I before I went in to the hospital).
Barby
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03/01/2010
I got my 3rd set of boosters on Feb. 18 & 19th at The Pain Center of Arizona. I got my access line put in on Feb. 17th and the staff at the Scottsdale HC infusion (cancer center) was very helpful. They actually remembered me from the access line...
Barby
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02/01/2010
Hey All, I am doing good. Thank God. I got word this past week that my 3rd set (of 4) boosters will be on Feb. 18 & 19th. I also went to see my pcp doctor (hummel) last tues. He was so shocked at how I was doing. I dont think he thought it was ...
Barby
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01/17/2010
I got word earlier that Dr. Siwek's office (The Pain Center of Arizona), in Phx, was able to get the Ketamine. He will be doing my next set of K-boosters in Phx as a trial & if everything goes right...
Barby
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01/06/2010
OK, I am back in AZ and doing well. I got my boosters Dec. 28th and 29th, 09 and I cant remember much about it. So, I arrive at Dr. S's infusion suite and sign in. That morning I could not remember if they said to take 1 or 2 Ativan, so I...
Barby
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12/22/2009
I'm doing well still. I traveled for 8 hours to my dad's house (which is normally 2 hour drive) last friday night. The ride was so long, and because of the snow storm that hit the east coast, by the time we got to my dads house the pain was...
Barby
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12/16/2009
I am finally home. Actually, I got home on Sunday night. My burning pain is gone, I am having some other pain feels like the deep bone pain, but it is not constant and occurs more when I am overworking. I slept most of the time I was there;
Barby
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12/14/2009
Well, today means its done! Barby will be checking out and ready to go Sunday afternoon. It sounds like Barby is ready to dance out of the building.
Ken
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12/12/2009
I talk to Barbys nurse Colleen this morning and she reported that Barby has spent most of her time being PAIN FREE.
Ken
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12/11/2009
Talk to nurse Stephanie this afternoon and she said Barby is sleeping but she wanted to pass a message. Barby said " I would be jumping around the room if they would let me cause this is the most pain free I have felt in years."
Ken
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12/11/2009
I talk to Barby's evening nurse Chris for an update and to pass a message. He said Barby is experiencing more mobility now than she has in a long time.
Ken
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12/10/2009
I remember when she would tell me she is willing to live with pain levels of 5 or 6 for the rest of her life, but if this goes well, we will see 0 to 1 pain levels ........yahoo!
Marby
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12/09/2009
Our day has arrived. During registration is the last I got to speak with Barby.
Ken
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12/05/2009
I am about to take off for PA.
Barby
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12/04/2009
I leave Friday for PA. I am so excited!!!!! But, we have not yet reached our financial needs goal so we will continue to fundraise.
Barby
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12/04/2009
I am thankful for everyone’s support and continued prayers, and ask that you please continue! I am still in need of some funding to make this Ketamine Procedure happen.
Barby
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12/04/2009
I got my Portacath placed on Nov. 11th. It was much more invasive than I thought it would be.
Barby
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12/04/2009
Tomorrow I am having a Porta Catheter put in.
Barby
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12/04/2009
BIG NEWS! I got the call today from Dr. Schwartzman’s office.
Barby
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12/04/2009
I finally got my heart test results and it turns out that at the end of this month I am undergoing a nuclear scan stress test.
Barby
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12/04/2009
I have had a rough few weeks but I did get my Table Tilt Exam and a new EKG.
Barby
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12/04/2009
I finally got my time and date scheduled for my Table Tilt Exam (Cardiac test).
Barby
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12/04/2009
I received my results from my echogram today and they came back normal.
Barby
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12/04/2009
Yesterday was a miserable day.
Barby
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12/04/2009
This afternoon I will have my echogram done at the AZ Heart Institute.
Barby
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12/04/2009
Almost 300 people turned out for dinner at T.G.I. Friday’s in Mesa, AZ on Thursday night.
Barby
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12/04/2009
I flew to PA for my Monday testing appointments this past Saturday.
Barby
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12/04/2009
I was seen by Dr. Schwartzman on March 31st.
Barby
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12/04/2009
I was suppose be in Pennsylvania in Feb. to see DR Schwartzman, but my appointment was moved to March 30, 2009.
Barby
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