About a month ago I burnt my hand. I couldn’t get into the doc right away for a IV-K booster so I was worried about the booster not being done in time for the procedure to work and would have to start over. I finally got the IV-K booster (2 day) July...
Barby
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We are having a lot of storms here in the last few days. I am really feeling them... and it sucks. I did burn my hand a few weeks ago. Instantly I had burning in my hand... obviously. Then it quickly spread to my arm and both legs. I have an IV-K...
Barby
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Just a quick update to let everyone know that things are going well. Storms still get to me. This past Sat. we had a storm and I started to vomit from pain, was a bad night. The storm left and I am doing better. I found out today that one of my
Barby
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I got my K-booster May 6-7th. Everything went great. I am now 90% pain free. I have to say 90% because storms still get me. Luckily, we have been having great weather, so I am doing very well. I have been focusing on foundation events coming...
Barby
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I have decided to get my next booster set early. I stepped on a bedrail a few weeks ago and punctured the bottom of my foot. It has been bothering me a bit. I did end up getting a tetanus shot last weekend and did start to feel better
Barby
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I am doing a blogtalk.com radio interview with Trudy Thomas from "Living w/ RSD" tonight at 5pm pacific time. I am really looking forward to it. I cant wait to share my story, tips and tell everyone about my book.
Barby
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I got my 3rd set of boosters on Feb. 18 & 19th at The Pain Center of Arizona. I got my access line put in on Feb. 17th and the staff at the Scottsdale HC infusion (cancer center) was very helpful. They actually remembered me from the access line
Barby
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I get my 3rd set of boosters tomarrow. I am looking forward to it. I have not had the feeling that I "need" to get it, but I am still excited because I want to stay in remission. I am assuming everything will go like the last 2 times. Dr. Siwek will be performing
Barby
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Hey All, I am doing good. Thank God. I got word this past week that my 3rd set (of 4) boosters will be on Feb. 18 & 19th. I also went to see my pcp doctor (Hummel) last Tuesday He was so shocked at how I was doing. I don't think he thought it was
Barby
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I got word earlier that Dr. Siwek's office (The Pain Center of Arizona), in Phx, was able to get the Ketamine. He will be doing my next set of K-boosters in Phx as a trial & if everything goes right... maybe somewhere down the line, he will
Barby
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OK, I am back in AZ and doing well. I got my boosters Dec. 28th and 29th, 09 and I can't remember much about it. So, I arrive at Dr. S's infusion suite and sign in. That morning I could not remember if they said to take 1 or 2 Ativan, so I
Barby
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I'm doing well still. On Thursday, last week, Ken and I went with my little brother and his wife and my new nephew to a holiday party thrown by his P.T. A lot of the staff there had read my book and really wanted to meet me in person. And with the
Barby
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I am finally home. Actually, I got home on Sunday night. My burning pain is gone, I am having some other pain feels like the deep bone pain, but it is not constant and occurs more when I am overworking. I slept most of the time I was there;
Barby
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Colleen said Barby remains pain free and ready to go home. Barby has no pain when stretching her right arm anymore and ask us to bring clothes and shoes that were normally uncomfortable to wear for any length of time. Colleen said Barby is ready to
Ken
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Colleen said that she is very happy to see Barby's progress and that Barby is on cloud 9. She also said day 5 is going to be the big test. Then they will know how much the treatment helped her. So far all signs are good and don't see any
Ken
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The nurse said she is doing very well and is very comfortable where she is. She still has 2 days left to receive the Ketamine. The treatment protocol is for 5 full days and she started December 7th Monday afternoon round 3pm.
Ken
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Chris said that she is reporting her pain to be at a level 3 but it will be and flow throughout the treatment. As she gains mobility comes new limits that she will need to learn. The real test comes on day 5 when she comes off the Ketamine to see if
Ken
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Barby had a pain level of 0 last night, but this morning it went up while trying to eat a little food. Eating brought on nausea which brought on the pain, so the nurse gave her some medicine to help both, and she is sleeping just fine now
Marby (Barby's Sister)
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I say our day meaning Barby mostly but myself (Ken) all the family and friends that has been there for support. We are all excited to hear and witness the progress. I will do my best to keep the updates posted.
Ken (Barby's Husband)
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I am about to take off for PA. I am excited and hopeful. I will try to have ken post updates each day next week. Thanks for all of your prayers.
Barby
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I leave Friday for PA. I am so excited!!!!! Donations are still needed to offset the ongoing medical expenses that will be incurred as I continue the Ketamine protocol to ensure ongoing remission. For the last seven years, I have had to deal with
Barby
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I am thankful for everyone's support and continued prayers, and ask that you please continue!
I am still in need of some funding to make this Ketamine Procedure happen. I was able to borrow$10k through a Medical Loan and I still have
Barby
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I got my Portacath placed on Nov. 11th. It was much more invasive than I thought it would be. I have a scar on my neck and one on my chest. They still are not healed fully. On Nov. 12th I began runninga fever and headed back to hospital to
Barby
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Tomorrow I am having a Porta Catheter put in. This way during the infusion and the following boosters, I will not have to have an IV line or Pic line replaced every few days. The Porta Cathetercan stay in for a long period of time and is often used
Barby
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BIG NEWS! I got the call today from Dr. Schwartzman's office. It is my turn to go for the Ketamine Procedure. This will be the 7-10 day inpatient version in Philadelphia, PA performed at DrexelUniversity Hospital. The bad news is... I still
Barby
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We are working hard to raise the funding for the Ketamine Procedure coming up and raise awareenss of chronic pain issues. This past week I attended the American Academy of Pain Management conference. I learned a lot and
Barby
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My trip to VA for Comic Pain Relief and the Chronic Pain Symposium last weekend were a great success. I am going to spend the next week resting as much as possible. The show was fabulous and I am excitedto have been a part of it.
Barby
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I finally got my heart test results and it turns out I have Cardiac Ischemia. This is when the flow of oxygen-rich blood to the heart muscle is impeded, resulting in inadequate oxygenation of the heart. At the end of this month I am undergoing a nuclear
Barby
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I have had a rough few weeks but I did get my Table Tilt Exam and a new EKG. The table tilt exam came back in the normal range, however the results of this EKG were the same as the original abnormal. In spite of that, the Cardiac doctor
Barby
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I finally got my time and date scheduled for my Table Tilt Exam (Cardiac test). It is next Wednesday. I am very excited because this is my last test before Ketamine.
Barby
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I received my results from my echogram today and they came back normal. I am still waiting for an opening at the hospital for the Table Tilt Exam and hope to hear something by Wednesday. Then I willbe ready for the procedure and all I have to do
Barby
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Yesterday was a miserable day. I tried taking Toradol a non-narcotic pain medication but within an hour I was vomiting which continued for hours. I had a spike in fever to 102.6 and of course major pain. I did not get in for the table tilt test yet. I am
Barby
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This afternoon I will have my echogram done at the AZ Heart Institute. Please say prayers that the results are normal. I am hoping to get squeezed in for an appointment to have my table tilt test onTuesday afternoon at the hospital in Phoenix. I
Barby
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Almost 300 people turned out for dinner at T.G.I. Friday's in Mesa, AZ on Thursday night. I want to thank everyone who was a part of the event. I want to personally thank Julia for her time spent and knowledge shared with Ken and I, at the event.
Barby
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I flew to PA for my Monday testing appointments this past Saturday. I was also notified that I was chosen for American Idol finale tickets. Last year I was unable to attend due to a visit w/ my lawyersand I really wanted to find a way to attend.
Barby
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I was seen by Dr. Schwartzman on March 31st. He also had 7 other internist with him during the exam. I learned a lot. The bad news I got that day was that I am full body RSD. I thought it was just on the Right (face, neck, shoulder, back, arm,
Barby
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I was suppose be in Pennsylvania in Feb. to see DR Schwartzman, but my appointment was moved to March 30, 2009. I fly out later this month and will be there for about a month. As I go through the process this page will be updated to let everyone
Barby
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